Indigenous health data
"Indigenous efforts to control and own data can be seen in the data sharing program between Tui’kn Partnership’s Strength in Numbers Project and the Government of Nova Scotia, which resulted in the Nova Scotia First Nations Client Linkage Registry (NSFNCLR). This project is a significant step forward, as the data is owned and managed by First Nations and provides a rare look at First Nations data for Status Indians both on and off-reserve. This paper briefly explains how health data is currently held and used in Nova Scotia, including a look at the NSFNCLR. Subsequently, the paper attempts to answer the following questions: How well equipped is the NSFNCLR to exemplify Indigenous perspectives on health data while managing a health dataset that informs policy and decision making?"
Read the full report by Cofi Jones :